Girl from Jelgava needs €240,000 for treatment of rare disease
Charity organization Ziedot.lv is appealing to the public for help for young Olivia from Jelgava, who has a rare genetic disease and needs €240,000 for treatment. The state does not cover the medication that could slow the disease's progression.
The charity organization Ziedot.lv has appealed to the public to help a young girl named Olivia from Jelgava, who has been diagnosed with a rare genetic disease. She is the only child in Latvia known to have this particular diagnosis.
To begin treatment and prevent the onset of paralysis, the family needs €240,000 — a sum they do not have on their own. The medication that could slow the progression of the disease is not included on the state's list of reimbursed drugs, meaning the family would have to cover the cost themselves.
Public support needed
Ziedot.lv stresses that without outside support, the family will not be able to provide Olivia with treatment that could help preserve her physical abilities and delay the disease's most severe effects. The organization is calling on anyone able to contribute to help raise the required amount.
The case highlights a broader issue in Latvia: access to treatment for children with rare diseases, where effective medications exist but their high cost and the lack of state funding force families to turn to public fundraising for help.
