Jelgava family seeks help to fund treatment for daughter Olīvija — 240,000 euros needed
A young girl from Jelgava named Olīvija has a rare genetic disease, and starting her treatment requires 240,000 euros that her family cannot afford alone. The charity Ziedot.lv is calling on the public to help prevent her from becoming paralyzed.
A young girl from Jelgava, Olīvija, has been diagnosed with a rare genetic disease and is reportedly the only known child in Latvia with this particular diagnosis. To slow the progression of the illness and prevent the risk of paralysis, she needs treatment that requires an initial 240,000 euros — a sum her family cannot raise on its own.
Medication not state-subsidized
One of the central obstacles is that the medication which could slow the disease's progression is not included on the list of state-reimbursed drugs. As a result, the family must cover the full cost of treatment themselves, and such a large amount is effectively impossible to gather without outside support.
Call for donations
The charitable organization Ziedot.lv has launched a fundraising campaign, appealing to the public to contribute toward the required sum. Without timely treatment, there is a risk the disease could lead to paralysis, making every day important in the search for funds to begin therapy.
The case again highlights the broader issue of access to treatment for rare diseases in Latvia — when necessary medications are not state-funded, families with severely ill children are left dependent on public goodwill and donations.
